CHD RESOURCES - For Families
Disclaimer:
At CHD Tablet Talk Foundation®, we believe that access to quality information can make a meaningful difference for individuals and families navigating congenital heart disease and related challenges. To better serve our community, we proudly share resources developed by our organization, as well as materials and information from trusted nonprofit partners and collaborators. The resources featured on this website represent the hard work, expertise, and dedication of many organizations committed to supporting and empowering those we serve. All content, materials, trademarks, and other intellectual property remain the property of their respective owners. Resources created by CHD Tablet Talk Foundation® are provided for personal, educational, and non-commercial use only. Unless expressly authorized in writing, these materials may not be copied, edited, altered, adapted, modified, republished, uploaded, posted, redistributed, sold, incorporated into other works, or otherwise exploited in any format. No rights are granted to reproduce, modify, or create derivative works from our materials. Resources originating from our nonprofit partners remain subject to the terms, permissions, and usage guidelines established by their respective organizations. Users should refer to the originating organization's website for any applicable copyright or usage information. Sharing links to resources is welcomed; however, the redistribution, reposting, uploading, or distribution of downloadable files or content without the permission of the applicable copyright holder is prohibited. When referencing resources, please provide appropriate credit to the originating organization. We are grateful to our nonprofit partners for their shared commitment to education, advocacy, and support. Thank you for respecting the time, expertise, and resources invested in creating these materials and for helping us maintain a resource library that benefits the entire community.
Families:
Join Nellie and Ellie during Heart Week at school as they help classmates learn what it means to live with Congenital Heart Disease (CHD). Through everyday school moments and gentle conversations, children learn about heart health, kindness, and the reminder that every heart is different—and every heart matters. (#1 AMAZON BEST SELLER – 4 WEEKS)
Join Nellie, a young girl living with Hypoplastic Left Heart Syndrome, and her pet elephant Ellie as they navigate hospital stays and discover ways to make them feel more manageable. Through Nellie’s experiences and “hospital tricks,” children learn how understanding and setting expectations can bring comfort and confidence during medical care.
A companion resource to Nellie and Ellie Hospital Adventures: A Heart Like Mine - filled with interactive activities, role-play, and coping tools to help children build confidence during medical visits. It also includes guidance for adults, supporting communication so children feel heard, prepared, and empowered in their care.
Join Nellie and Ellie on her first day of Kindergarten as she experiences both the excitement and nerves of starting school. Through her day, children are gently introduced to friendship, positive social behaviors, and the idea that every new experience is a chance to learn and grow.
My CHD Sidekick is a digital care journal app specifically built for CHD families. It provides one secure place to organize, track, and share everything related to your child’s care.
My CHD Sidekick is completely free for CHD families, made possible by The Brett Boyer Foundation.
When living with CHD, we can become so accustomed to the adaptations we make that we may not even realize an accommodation has been made. Over time, it can be easy to forget that we are doing things a little differently than the average person. The goal of this guide is to help you identify the accommodations your child may need as they prepare for school.